How I Achieved 80% Remission from clEDS, MCAS, LC, Hashimoto's & More

There is a quote I have not been able to shake lately:

"A healthy person has a thousand wishes. An unhealthy person has one."

That has been me for the past few years. Chronic fatigue, constant pain, and symptoms so severe I was surviving on fewer than a dozen foods and spending most of my time in bed. Three years ago, my health hit a breaking point. But today, I am feeling 80 to 90% better, most days hitting a 7, 8, or even 9 out of 10.

And so many of you have asked how I got here.

Let me start by saying: I am not a doctor. I am not a health coach. I am a business consultant. This is just what has worked for me, what I tracked, and what I am continuing to test. Always do your own research and consult professionals. But I am sharing this in case it helps someone else feel a little less overwhelmed.

A Quick Backstory

Over the years, I was diagnosed with over 30 health conditions: Hashimoto's, Lyme, mold toxicity, heavy metal exposure, ADHD, scoliosis (with a full spinal fusion), chronic fatigue, and fibromyalgia, just to name a few.

But the real clarity came in 2024 with genetic testing:

• Classical-like Ehlers Danlos Syndrome (clEDS)
• Likely Mast Cell Activation Syndrome (MCAS)

These explained the seemingly unrelated symptoms: joint and nerve pain, brain fog, dizziness, severe histamine intolerance, and more. I spent tens of thousands of dollars on doctors and diets. Things helped, but I hovered around 5 out of 10, functionally surviving.

Then long COVID hit. I dropped to a 1 or 2 on the scale. It was a dark year. But since then, and especially in the past two months, something has shifted.

Here is what has made the biggest difference.

The Four-Part Protocol That Changed Everything

1. High-Protein, High-Calorie, Low-Histamine Diet (about 20% of the improvement)

After years of elimination diets and being chronically underweight, I finally tracked my intake and realized I was severely undereating. Often less than 1,300 calories a day when I needed 2,000 to 2,500. I began prioritizing protein (150g per day) and nutrient-dense calories to rebuild my strength and support my EDS.

Tips:

• Plan meals around protein first
• Use smoothies and protein powders like Naked Whey and Naked Pea
• Stay consistent to keep symptoms from returning

2. Targeted Medications (about 20%)

I am currently on a combo of meds that address inflammation, histamine, and hormone imbalances:

• Zyrtec (Costco knockoff), now reduced from 4 to 2 per day
• Daily macrobid for UTIs (EDS-related bladder issues)
• Low-dose prednisone for systemic inflammation
• Estradiol plus progesterone for peri-menopause (huge impact on mood and histamine)

Hormone balance was a game-changer. Once my estrogen stabilized, even my eczema cleared up.

3. Targeted Supplementation (about 15%)

These support gut health, reduce histamine reactions, and build immune resilience:

• GI Revive for gut repair
• HistaEase plus HistaHarmony (upper and lower GI histamine support)
• Probiotics and DAO enzyme support
• L-glutamine, creatine, D3/K2, Terzyme enzymes
• New additions: HoloImmune and Tributerin-X

I did not start all these at once. I added one at a time based on testing and symptoms. Consistency here matters, but they are not miracle pills. They are support.

4. Nervous System Regulation (Polyvagal Work = 50% of the results)

This is where the magic happened. Polyvagal work helped my body shift out of chronic stress response and into rest and healing. Without it, I could not stay consistent with everything else.

My daily routine includes:

• Morning and night polyvagal exercises (neck massage, humming, tapping)
• Alternate nostril breathing plus meditation
• Slow movement, music, joyful play, mantras, and EFT tapping
• Limiting media, people, and stress that inflame symptoms

My rule of thumb: I keep going until I get a few big yawns. That is how I know my body is shifting into parasympathetic mode.

So Why Am I Only at 80%?

Three reasons:

1. Consistency. If I fall off even for a couple days, symptoms return.
2. Time. Deeper healing takes time.
3. Muscle building. My next big focus is building strength to support my joints (especially for EDS).

Final Advice for Anyone on a Similar Journey

• Do not try to do everything at once. Stack habits slowly.
• Start with the nervous system work. It makes everything else easier.
• Accept that consistency will not be perfect.
• Be ruthlessly selfish about your healing. You are the domino that makes everything else in your life possible.

Your Turn

I am still figuring this out and I would love to hear what is working for you. Drop a comment on the YouTube video or share this post with someone who needs it.

Fist bump for working on yourself.

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